26th August

had to get up early to be ready for my student who I am teaching to update our website. The beauty of having ILF to fund PAs is that if I need to get up early or fancy a lie in I am able to do this. Before the ILF I was at the mercy of the home help service and had no choice or control in my life. Going back to the mid 80s when I was entirely dependent on statuary services I was controlled by whoever determined the home carers hours. I remember raging about the fact that it was impossible to visit friends or have relationships because I never knew the time people would turn up. There was a particular occasion when I met a man and invited home to stay overnight with me. I rang the social services department to ask them to cancel my visit. But they told me that was impossible so I locked the back door and stuck a notice on the door which read “NO HELP NEEDED MAN IN HOUSE”. During the afternoon I was visited by the person who operates the volunteer centre. She came to give me feedback on the IT support I had been giving to an elderly lady in my district. I had only been able to do this because my PA was able to take and collect me.

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